Mum says autistic son, 18, left abandoned and falling through cracks in system
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Cherisse Lanigan and her son Callan live in Draperstown, County Londonderry Cherisse Lanigan feels her son has been "abandoned and is falling through cracks in the system" because of a lack of support for young adults with learning difficulties.
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Callan has autism and Attention Deficit Hyperactivity Disorder (ADHD), as well as anxiety and other behavioural issues.
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After recently turning 18, he took a test which found he has an IQ above 70.
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In Northern Ireland, this means he cannot access adult disability services, even thought he had been assessed as having special educational needs as a child. The Northern Health Trust has said it recognises the approach "can present significant challenges" for individuals and families who do not meet the eligibility criteria.
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Health trusts in Northern Ireland use a psychometric assessment to define if someone has a learning disability or not.
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Cherisse, who lives with her son in Draperstown, County Londonderry, described his autism diagnosis as complex and said that he has "significant social and emotional support needs".
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"My son's autism is so much more than his IQ, and he really struggles with the social aspects of being around people, but any help we had has now been taken away because of one test," she told BBC News NI.
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"It just feels like he's being treated like he's not that important because without support, he's not going to make progress, so is he just expected to stay at home all his life?"
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Callan Lanigan recently turned 18 and now attends a further education college Callan was diagnosed with autism at the age of two.
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He was in a special learning unit in a mainstream school for most of his time at school.
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He currently attends a further education college with support one day a week but his mother accompanies him to local youth clubs a few nights a week. "Callan could tell you everything about a computer and how it was built, but he struggles with the social and communication aspects of everyday life," she said.
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"But the system just seems to want to put all the emphasis on his IQ and it feels like everything else is less important and because he doesn't fit into a neat box or category, we're left in limbo."
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A statement of Special Educational Needs (SEN) ends with school, but in England a care plan is in place until a young person reaches 25.
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There have been a number of campaigns in Northern Ireland in recent years to do more for young people with SEN after they leave school.
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Earlier this year, the health minister said there was not enough time to introduce new ministerial policies for post-SEN support ahead of the next assembly election.
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Ema Cubitt is Northern Ireland's Independent Autism Reviewer Northern Ireland's Independent Autism Reviewer says it is "indefensible" that adults with autism were being left to navigate "the most complex of systems" and as a result are often "left in crisis".
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Ema Cubitt said: "Once that learning disability door is closed and that support is taken away, where do these families go?
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"Those families who love and support people with the most complex needs are also navigating the most complex systems, and government are well aware of this problem and the issues these families are facing."
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Sinn Féin MLA Emma Sheerin has previously raised Callan's case in the Northern Ireland Assembly.
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"Callan has just missed that threshold by the tiniest of margins, he has fallen between two stools time and again, leaving him to linger in a wasteland," she said.
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"I have previously called on the Department of Health to do something for people like Callan who do not just fit in the box."
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Sinn Féin MLA Emma Sheerin has previously raised Callan's case at Stormont She added: "I'm not saying that if Callan had the learning disability diagnosis and access to these services that it would solve everything, but he's being robbed of even being given the chance to try and see if it would help."
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The Northern trust said it acknowledged the "frustration and worry" felt by Cherisse and Callan Lanigan, but said that it had to commission care through specific mental health and learning disability programmes.
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A spokesperson added: "We recognise that this approach can present significant challenges for individuals and families who do not meet the eligibility criteria for accessing these services."
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Cherisse Lanigan believes her son is missing out on key opportunities The trust said it would continue to engage with the Lanigan family, and Cherisse confirmed that discussions had started around getting her son more support.
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In a statement, the Department of Health said it was aware that young people with autism can present with vulnerabilities similar to those with a learning disability and that further work was needed to meet their needs on a "regional consistent basis".
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A department spokesperson added: "Work is underway within a financially-constrained environment to improve clarity, consistency and support for people as they move into adulthood."
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Despair as time runs out for SEN school leavers' law Warning SEN children face 'cliff edge' after school SEN children 'fall between the cracks after 19'
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